30th November 2016 – An end to the worry?

6 weeks ago – surgery to remove my kidney was 6 weeks ago. I’ve recovered more rapidly then I had ever anticipated. I know that I am extremely young to have such an operation, and most of the stats will be broadly based on those in their 50’s and upwards, but nonetheless I have been pleasantly surprised at how I have smashed through their recovery rate stats and at how well I am doing !

The scaring, which in the early days was pretty grim, has de-scabbed, faded and shrunk already, and this is without the endless hours of smarming Bio-Oil into my stomach like I had been instructed. Yeah, I didn’t bother following those rules .. but that’s me huh !

Due to my finances taking a battering, given I had been off work for 4 months, I sought out, interviewed for and secured a new contract back in the City 3 weeks after Surgery – and I was back to work that week. I know that health comes first, but really, health is pretty irrelevant if you are homeless and have no food, so decided to ignore the well meant suggestions of “staying home for at least another month” and got back out there, albeit rather hasty, it was a necessity !

I’ve been here 3 weeks now. It’s a fantastic place to work, the staff are friendly, no-one’s bitten or barked at me just yet, and my line manager is inspiring and caring – yet not demanding. She’s well aware of my operation and health condition and I think she has been more concerned with how I’m feeling than I am. All in all it was the perfect choice contract-wise, for where I was at post nephrectomy. Although I have had to take a step down role-wise, d’ya know what, that just doesn’t matter, I am back to work 3 weeks after major surgery – and I’m doing ok !

I have my 6 week follow-up with my surgeon and consultant on Monday. I have some things that I do need to speak about with him. Already, since surgery, I have had the start of 2 water infections, which had I not have treated with uber strong drugs, would have escalated into a full blown kidney infection, on the remaining kidney that needs to be preserved, loved and taken care of if it is going to see me through till the end of my days. I can’t risk the remaining kidney becoming scared and damaged through stones, infections etc. I don’t need to be on dialysis or a transplant list in the future – that is for sure !

Having this operation was supposed to rid me of such kidney issues, and I am alarmed at how sensitive my body now is to hydration – and something as simple as not consuming upwards of 2.5 litres of water seems to trigger the most awful infection. There have been lengthily discussions about removing this kidney, it’s not like every alternative avenue wasn’t exercised and thought through – but not once did anyone mention that in actual fact I would be more prone to such infections and at risk of my kidney function deteriorating. It will be interesting to see how the remaining kidney is coping, since he was part of a team and now he is doing the work of two kidneys.

The check this by monitoring your creatinine Levels. Elevated creatinine level signifies impaired kidney function or kidney disease. As the kidneys become impaired for any reason, the creatinine level in the blood will rise due to poor clearance of creatinine by the kidneys. Abnormally high levels of creatinine thus warn of possible malfunction or failure of the kidney(s). Hopeful for a level below 1.1 ! Fingers crossed.

I’m also keen to understand the pathology report of my poor little kidney. Dare I say it – did it show any signs of malignancy? I will find this out on Monday. But I am a little on edge to say the least. It’s been a long road, with no real answer as to what has caused chronic haematuria for years, I’m hopeful that the pathology report will shed some light on this mystery.

I used to be relatively active, well active enough that I didn’t need to worry about what I ate, my weight or shape etc. but following abdominal surgery, and especially as it was a nephrectomy I have been unable to exercise in ANY capacity. I need to know when this will change. I understand that I can’t go back to running long distance and doing marathons due to the risk of dehydration, but when can I lift?

I nearly slipped yesterday, and managed to save myself, but the agony that I was in afterwards surprised me – I felt like I tore something within my core/scar area.

I guess I am a little impatient, but I do just want life to return to normal and I’m hoping he’s going to be able to answer some of my questions. I don’t like being restricted – I want to have choices to live my life how I would like to.

I’ve decided that on Saturday and Sunday mornings I am going to start getting up early and going for a long walk in the country park – I need to get moving, I need to get the endorphins pumping, I need an excuse to hunt out a new playlist, I need headspace to think about goals for next year!

Hope that everyone has a lovely and productive day – we are now on the decline to the weekend, and I can’t wait – lots of festive treats in store and Christmas Decoration shopping, hell, I may even put them up !



2 thoughts on “30th November 2016 – An end to the worry?

  1. Thank you for your kind words. I’m getting there, one day at a time, although some days I do forget what I’ve been through …

    Life is a funny old thing, hey !

    I hope you are well now too

    Take care x

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